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Thrombophilia Workshop for Providers Hosted by NHF and NATT: 6/24/06

Saturday, June 24, 2006 in Denver, CO

Program Highlights

Inherited vs. Acquired Thrombophilia
Both inherited and acquired risk factors that increase the risk of thrombosis will be reviewed. Controversies surrounding testing for thrombophilia will be addressed as well as treatment and management implications of the inherited thrombophilias.

Women's Health Issues
Clotting disorders pose important problems for women because of their relationship to reproductive issues, such as clotting complications of pregnancy and recurrent fetal loss. The speaker will address the heightened risks women face and the appropriate diagnosis and treatment during their lifespan.

Venous vs. Arterial Clots
The treatment of thrombosis is based on an understanding of the processes that lead to its development and propagation. Arterial thrombosis is characterized by platelet activation and responds to anti-platelet therapy. Venous thrombosis, by contrast, is a consequence of coagulation factor activation and is best treated with anticoagulants like heparin and warfarin. The speaker will address these issues related to published management guidelines that recommend the preferential use of these anticoagulants to prevent and treat venous thromboembolism.

Diagnosis, treatment and management of thrombosis and thrombophilia in pediatric patients will be discussed. The approach in children will be contrasted to that of the adult population.

Discussion on Comprehensive Care Model in Thrombophilia
Panelists will discuss strategies for integrating thrombosis and thrombophilia care into the comprehensive care model. Topics to be addressed include: setting up a thrombosis clinic; educating consumers; dealing with social issues including worker's compensation, disability and monetary issues, and addressing genetic inheritance and family testing.

Social Work/Social Issues in Thrombophilia
This session will look at the role of social work in thrombophilia. There are many psychosocial issues and problem areas that go with this diagnosis. We will also look at making the transition from working with bleeding disorders to including thrombosis in the patient population. We will also look at resources available to social workers.


7:30 - 8:30am BREAKFAST
8:30 - 8:50am Introduction and Welcome (The National Alliance for Thrombosis and Thrombophilia and National Hemophilia Foundation)
8:50 - 9:45am Inherited vs. Acquired Thrombophilia
9:45 - 10:40am Women's Health Issues
10:40 - 10:50am BREAK
10:50 - 11:20am Genetic Counseling for Thrombophilia
11:20am - 12:15pm Venous vs. Arterial Clots
12:15 - 1:15pm Lunch
1:15 - 2:10pm Pediatrics
2:10 - 3:05pm Social Work/Social Issues in Thrombophilia
3:05 - 3:15pm BREAK
3:15 - 4:30pm Discussion on Comprehensive Care Model in Thrombophilia
4:30 - 5:30pm Wrap up
5:30 - 6:30pm Reception


Leo Brancazio, MD
Women's Hemostasis and Thrombosis Clinic
Duke University, Durham, NC

W. Keith Hoots, MD
Gulf States Hemophilia and Thrombophilia Center
Houston, TX

Ruth Ann Kirshman, NP
Mountain States Regional Hemophilia & Thrombosis Center
Denver, CO

Ed Kuebler, LMSW-ACP
Gulf States Hemophilia and Thrombophilia Center
Houston, TX

Marilyn Manco-Johnson, MD
Mountain States Regional Hemophilia & Thrombosis Center
Denver, CO

Stephan Moll, MD
University of North Carolina
Chapel Hill, NC

Thomas Ortel, MD
Duke University
Durham, NC

Christiane Thienelt, MD
University of Colorado Health Sciences Center
Denver, CO

Elizabeth Varga, MS
Ohio State University
Columbus, OH

FAQs about On the Road

Q. How can I receive CEU credits for attending?
Applications and all materials needed for Continuing Education Units (CEU) and a list of approved sessions will be available at the On the Road meetings. The processing fee for all CEU credits has been incorporated into the registration price. All completed CEU applications and evaluation forms for each credited session must be completed and submitted to NHF on site in order to receive credits.

Q. Who should attend?
Healthcare providers of all levels working with patients with thrombophilia or thrombosis.

Q. How much does it cost?
The fee for On the Road is $10 per person.

Q. Who will be there?
National Hemophilia Foundation & The National Alliance for Thrombosis and Thrombophilia leaders, national experts in thrombophilia, HTC professionals, social workers and physical therapists will all be on hand to network and share best practices in the treatment and care of thrombophilia and thrombosis.

Location and Hotel Accommodations

Hotel accommodations must be made through the NHF meetings department. For information regarding availability at NHF's group rate, please email or call 1-800-424-2634, ext. 3706.

Denver, CO
Omni Interlocken Resort
500 Interlocken Blvd
Broomfield, CO 80021

Contact/Registration Information

If you have any questions about NHF's On the Road 2006 or would like to register, contact:

Jennifer Crawford, MPH

Sonia Roger


For more information, go to

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